Tuesday, December 2, 2008

3 Weeks Later - Video Update

It's been 3 weeks since Matthew's blinking started. We've seen his pediatrician since my last post on this topic. He says it's a "tic" that *might* have been set off by the dilating eye drops and "may or may not go away". Unlike the eye doc's recommendation (to punish Matthew with saline drops), the ped said to ignore the blinking/don't bring any attention to it. So that's what I've been doing. Since Friday, it seems as if he's blinking harder with one eye than the other. I took this video tonight and emailed it to his neurologist to get her opinion...I'm sure she'll reply with "let's do an MRI!" but the answer is still "no more sedation!". I don't feel they are seizures b/c he repeats and answers questions while blinking. So tell me what you think...if you have seen a child do this who in fact has seizures, I'd like to know. I'm also looking for more info on tics and what can be done to decrease them. BTW, I received the results of his blood strep tests today and they are negative (= good, no PANDAS). We go to see the DAN doctor on the 12th.
video

Other news: John was home for Thanksgiving. It was just the three of us and Matthew was very happy to see his daddy again! John is in Norfolk this week but will be home next week. He'll be home every other week during December...which is good b/c I am having my hernia surgery on the 15th (mom is off for a month so she'll stay with me on the days he is away). It's a 2-4 week recovery period, and I'm not allowed to lift anything over 15 pounds for 6 weeks...that includes 40 pound Matthew!

9 comments:

Michelle Raynesford said...

HI Cyndi,

My middle son Neil has unspecified autism. He is 8 years old and in the second grade.

I am here for you. Please contact me either via facebook or by phone at 785-623-9863.

All the best,

Michelle (Barr) Raynesford

DMV47 said...

Watched it - he is a cutie! In my (motherly) opinion, I wouldn't worry so much about the tic:)Matt has great language!

Casdok said...

Lovely that you were all together during Thanksgiving.
Donna Williams amongst others have written quite a bit about tics in her books. But maybe worth looking at her website? Or even emailing her?

Judith U. said...

Surgery! Agg!

Glad your mom can help out. Here's to less blinking and a quick recovery ...

motherx said...

Love the video! he is so sweet. Hope you get enough help to recover asap.

J said...

I hope your surgery goes well and you have a speedy recovery! Also I hope they find out what the cause is of the blinking. Even if it is not going to go away know, I'm sure it would be nice to know exactly what it is.

A Family said...

My son does some eye rolling from time to time, and he had an MRI which showed no seizures. One of my sons also did the eye blinking, and no seizures. Perhaps see what happens with time?! I am new to your blog. I also have a son with autism.

A Family said...

Woops! I meant my son had an EEG that showed no seizures. We, like you, have opted out of the MRI

Angoraknitter said...

Wow, I'm so glad your mom can come to help during your recovery. Good luck, keep us posted...and hopefully you'll be better by time we move to the area (May-ish...can't believe we're so close now).