Friday, August 29, 2008

First Round of DMSA Chelation

We started transdermal chelation last weekend. It wasn't as scary as I anticipated but it was exhausting. We began Friday morning and dosed every 8 hours around the clock until Sunday night (well, it was really Monday morning). I had to mix and apply the creams to various parts of Matthew's body (where the skin is thin)...1/4 ml of DMSA with IPM and 1/4 ml Glutathione with it's IPM. I must wear gloves which Matthew is afraid of b/c they remind him of blood draws, but he is getting better with them. The hardest part for me was having to wake in the middle of the night to mix/apply the cream.

The schedule we use is 3 days on, 11 days off and we'll always do it on weekends so I can monitor his reaction. I was expecting a rash (a somewhat common reaction) at the application sites but he didn't have any. (Thankfully, he is not allergic to sulphur.) The only difference I noticed was that he was more tired/crabby on the 2nd and third day and then for 2 days after that. On the 11 days "off" I'll continue to give him his daily Glutathione cream at a larger dose (1 ml)...this helps with detox.

From what I've read, it usually takes anywhere from 1 to 3 years to chelate a child with heavy metal poisoning...hopefully it won't take too long for Matthew. He is young (almost 3.5) and has less exposure than older kids (especially the children that were clobbered with thimerosal during the 1990's). We'll keep doing the DMSA cream until we don't see good "pulls" (of metals in the urine/stool tests) any longer and then I think we'll ask for DMSA and/or ALA in capsule form (which I could mix in his juice). I know suppositories and IV chelation would get bigger pulls/faster results but I'm just not interested in doing those right now...besides our DAN doesn't do IV's and Matthew wouldn't let anyone put one in him!

P.S. Here's the link to the pharmacy/product we are using:


DMV47 said...

Good luck, and I really hope for the best for your Matthew! We're still waiting for the supp-stuff. *groan* NBear still does only 1ML of glutathione daily as well. I will definitely keep reading your updates!

Anonymous said...

Greetings from the bullpen!
Sorry we haven't written before but work has been Looonnnggg and getting the house in order and Zach on treatments has been consuming us!

Good to hear you're chelating. Please keep the blog up to date!!

Zach is doing well. Still non-verbal, but picking up a lot more signs and improving behaviorally. ABA has been great.

Our DAN! doctor got him on GFCF, B6/mag, enzymes and probios. GI tract health improved markedly. Next weekend we start oral DMSA chelation, with a 300mg dose followed by day long urine collection. If it shows metals then we'll go into a 3 days on/2 weeks off cycle with him.

Tell John we said hi!!! And great to see Matthew progressing so well!!

-- Your anon. bullpen friend

Lynn Stallworth said...

Can't wait to see how chelation works for you. We will be testing for metals next week. Exciting stuff!

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Anonymous said...

Can you please give an update of the results from the chelation?

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