Monday, June 23, 2008

Pirate's Cove Water Park



Yesterday we went to a pirate-themed water park. It has a 24-foot high play structure with a 300-gallon dumping bucket, water slides, and waterfalls. It's close to our home and a good introduction to water parks (geared towards kids 3-6). Matthew enjoyed it until he went down the slide and went under water. Due to his sensitivity issues, he has an aversion to getting his face & ears wet. After that he kept repeating "go home, got to go home" so we left. We will try again in a couple weeks.

Thursday, June 19, 2008

Afternoon @ Pohick Bay Park


Today we took our first trip to the Pohick Bay Regional Park which is off the Potomac River and only 8 miles from our house.

Matthew saw a deer ("Bambi's mommy") and some baby catfish (that a boy caught and put in a bucket).

He walked and sat on the dock and then played in the sand and threw rocks in the water.
I think if he had a bathing suit on he would have gone in the water! Since the park is so close and he enjoyed it so much we will be going there often.
Here's a short video...

Monday, June 16, 2008

End of School Year & New School News

Matthew had his last day of preschool on Friday. He's off for 3 weeks and then returns for 5 weeks of summer school (4 hours per day). He will be attending a new school in the Fall. It is the same PAC program but in a different location. It will be a transition for him, but we hear the school has a good reputation and one of his classmates will also be transferring.

The teachers at his current school made this video to be shown at a potluck dinner for all the preschoolers and their families. We had terrible storms that night so the dinner was cancelled, but Matthew's teacher sent a copy of the video home and Matthew LOVES to watch his friends. It's a 6 minute video and most of Matthew's "close-ups" are during the first song. (He's the only blond boy with glasses so it's easy to pick him out!)



P.S. All of the children in the video either have the "developmental delay" or "autism" label. They are a great group and we will miss them!

Friday, June 13, 2008

Number Two Nursery Rhyme

Here's a video of Matthew reciting a nursery rhyme. It's from the Baby Einstein Numbers Nursery video and the language cards that go with it. Matthew has it memorized...now we just need to work on pronunciation! Listen carefully!!!



"Call us a couple. Call us a pair. There are two of us, and so we share. Two apples and two lollipops, two pickles and two red gumdrops. We share two hugs b/c we're friends - on one the other can depend."

Tuesday, June 10, 2008

Green Our Vaccines Rally - "Too Many, Too Soon!"

Last Wednesday (June 4th) was the Green our Vaccines Rally in Washington, DC. Speakers included: Jenny McCarthy, Jim Carrey, Robert F. Kennedy Jr., Dr. Jay Gordon, Dr. Jerry Kartzinel, and Dr. Boyd Hayley. More than 40 autism and environmental organizations supported their efforts and an estimated 8,500 participated. Every state was represented including supporters from Mexico, Canada, and the Philippines.

I was really looking forward to marching but became sick the night before and ended up staying home in bed...wishing that I was there in my green shirt holding up a picture of Matthew. I want to thank the 8,500+ people who rallied to demand that our government take the neuro-toxins out of our children's vaccines. Toxins such as mercury (thimerosal is still in 11 FDA-approved shots), aluminum, ether, antifreeze, formaldehyde...the list goes on & on.

For the record, I am not anti-vaccine, just anti-the poisons they have in them and -the schedule that is pushed on unknowing parents (children receive 36 shots by the time they are 3 years old). Before Matthew was diagnosed with autism, I had no idea these toxins were in his shots. IF I had known, I would have used an alternate (delayed) vax schedule with one shot at a time. I also would NOT have given him Tylenol before and after each vaccination (as our peds advised) b/c acetaminophen reduces glutathione which the body needs to detox.

Here are a few links with news coverage and a blog with some excellent pictures from the rally. Please take a moment to look at them...

http://abcnews.go.com/Video/playerIndex?id=4995883



Wednesday, May 28, 2008

New Sound Sensitivities

Over the last few weeks, Matthew has developed sound sensitivities (which he's never had before). He screams/cries and shakes uncontrollably when he hears certain noises such as a neighbor using a saw, his ABA therapist deflating a balloon, and today her cell phone going off on vibrate mode. Usually he doesn't give an explanation, but today he told her it was a bumble bee going to bite him. After it went off he was petrified of her bag so she took everything out and put the bag on her head to show him it was safe but when we tried calling her cell later he freaked out again. He even got upset when the phone played a song. So now Matthew is scared of her cell and says "bye sound" to make it go away. Anyone out there have experience with this? (P.S. She didn't want her face in the pic.)

Tuesday, May 27, 2008

Memorial Day Weekend

Matthew walked for the first time yesterday, six days after his fall. I sent him to preschool (with his stroller) today. It's one of the 3 "long" days (9:10-3:30) so it will be interesting to hear how he does.

Yesterday was Memorial Day, a day of remembrance for those who have died serving our country. Thank you to all our service members and their families! We spent a quiet day at home. We cooked on the grill and ate outside...the weather was perfect. We had intended to take Matthew to the pool but decided not to since he is still unstable on his foot and didn't want him to slip on a wet surface.


On Sunday, we took Matthew for a ride on the Metro (= his favorite thing to do). We were just going to ride the train and not get off but we needed to make a "pit stop" so we got off at the Smithsonian http://www.smithsonian.org/ and went to the Natural History museum. I have to laugh b/c some people travel from afar to visit these museums and we go simply to use the rest room! On the way out we saw thousands (not an exaggeration) of motorcycles. They were the Rolling Thunders..."an annual motorcycle rally that is held in DC to call for the govt's recognition and protection of POW's and MIA's. About 400,000 vets roar across the city as a tribute to American war heroes." Funny how when it comes to clowns and parades we always happen to be in the right place at the right time! The motorcycles were very loud and I was afraid Matthew might have another sensory overload attack, but he just sat quietly and watched them go by.

Thursday, May 22, 2008

Matthew Fell & Injured Ankle

Tuesday night Matthew fell down the stairs off the kitchen onto the hard wood floor in the family room and cannot bear weight on his right foot now. When he tries to stand up he falls and cries "boo-boo". I took him to the ER. He had x-rays which showed no fractures but they think it's a bad sprain (they're not exactly sure b/c he can't tell us where it hurts). I have to give him 250 mg of Motrin every 6 hours and it if doesn't get better in 2-3 days we'll need to see our pediatrician or an orthopedist. Since he can't walk I carry him everywhere...the stairs are the hardest b/c he weighs 40 pounds and my wrists are shot from a previous injury. He definitely won't be in school for the next few days. I really hope he gets better soon and that we won't have to see a specialist. Please keep you fingers crossed!

Saturday, May 17, 2008

Terrifying Train Tunnel

We took Matthew to Burke Lake Park, a local park that has a train that runs through it. Matthew went on this ride several times last summer and while he didn't love every minute of it, he surely didn't do what he did today. There is a dark tunnel that the train goes through twice and Matthew totally freaked out both times. He shook uncontrollably (like a scared dog during a terrible thunder storm) and held his breath while going under the first time. The train looped around and we warned him we were going through again...he shook/bobbed and had a horrible expression on his face. It was very scary for us b/c Matthew has a hole in his heart (VSD) and has had absence seizures so we were afraid he might have a seizure or a even heart attack. The weird thing is, he's been through tunnels on the Metro and they don't phase him at all. John says maybe it's b/c we were in the open air, it was very dark, and the horn/whistle were blowing loudly. Needless to say, we won't be going back there. This is the pic I took before we reached the tunnel.

Friday, May 16, 2008

Got TINGS??!

I went upstairs to get dressed (I had laid out my clothes ahead of time so all I had to do was throw them on) and left Matthew alone in the family room for 5 minutes and this is what I found: Matthew had opened the kitchen pantry door, climbed up to the 2nd to top shelf, grabbed the Tings bag, opened the zip lock bag they were in, removed the chip clip, dumped the contents onto his plate, and began eating. You cannot leave this child alone for one minute! I thought I was being "safe" by giving him juice, turning on PBS Kids (Clifford), and dead-bolting the doors. Matthew obviously has an addiction to Tings. They are similar to Cheetos but without the cheese (he's GFCF) and are "natural crunchy corn sticks" made by Robert's Gourmet. They are pretty good but I wouldn't eat them for breakfast!

Tuesday, May 13, 2008

Celebs with Kids on the Spectrum

I read an article today about celebrities who have children with autism. The most famous appear to be: Sylvester Stallone, Doug Flutie, Dan Marino, Ernie Els, Jenny McCarthy, Holly Robinson Peete, and Toni Braxton. These celebs work hard to raise awareness and research funds for ASD. John Travolta also allegedly has a son with autism but he and his wife Kelly Preston will not admit it and may be denying him treatment because of their beliefs in Scientology. The funny thing is that John's brother (Joey Travolta) produced a documentary on autism...I wonder if that was his way to get his brother's attention. Whatever Jett Travolta’s diagnosis, I hope he is getting the services and education he needs. Having a child with autism is NOT a shame, but doing nothing to help him is.
P.S. Notice Jett toe walking in the picture?...he is also non-verbal.

Sunday, May 11, 2008

Happy Mother's Day!

John and Matthew took me to a special lunch at the Army-Navy Country Club in Arlington. It was a nice buffet and Matthew was on his best behavior and even wore a tie! Hope all the mommies had a wonderful day!

Saturday, May 10, 2008

National Train Day @ Union Station

Today we took Matthew to Union Station in D.C. for National Train Day. Amtrak provided magic shows, arts & crafts, and live music for the kids. Matthew had fun watching the model trains and received a goody bag with lots of neat stuff including a commemorative wooden train whistle.


Sunday, May 4, 2008

Matthew Rode a Horse!!! :)



Today we went to an open house at Simple Changes in Lorton, VA. (Here's a link to their website: http://www.simplechanges.org/index.htm) Matthew rode a horse named Kali and loved every minute of it. The riding center is 7 miles from our house and I learned about it via an email from our local ASA chapter. Matthew was not afraid to touch the horse on the nose and gladly let a stranger put a helmet on him and lift him up onto the horse...it was amazing! Here's a short video and some pics. The center offers therapeutic riding sessions for kids 4 and up and hippotherapy for kids 2 years & up. We're going to try to get him into the summer session but the website says they have a long waiting list. In any event, it was a great experience for him and on the way to the car we ran into some clowns...they seem to be everywhere these days! Then we drove a few miles down the road to the Mason Neck State Park where Matthew had fun at the playground and went down his tallest slide to date. It was an exciting afternoon!
ETA: we just got a call from the center, we entered a raffle and won a $85 massage!

Thursday, April 24, 2008

Fun with Daddy at the Pentagon

Today was "bring your child to work day" at the Pentagon. Matthew and I took the metro in and met John's co-workers (Matthew fell in love with Kate), ate lunch in the cafeteria, and participated in the craft activities in the center courtyard. Matthew made a very cool decoration for his room and even met some clowns!

First Class Picture!

Here is Matthew's (first ever!) class photo. There are two preschool autism classes at his elementary school...6 students (ages 2-5), 1 teacher, and 2 aides per class. His male aide was absent on picture day so the regular female substitute sat in.

Other news: I received approval from the principal to work as a volunteer in the kindergarten autism class. I have been twice so far and really enjoy helping out and spending time with the kids...they are very sweet.

Sunday, April 13, 2008

10 Things About Matthew

I was asked by GFCF Mommy to play a game and come up with 10 great things about Matthew. Here's the link to her blog http://gfcfmommy.blogspot.com/ and here are my 10 things (which I did # but Blogger made them bullets!):

  1. Matthew is incredibly loving and sensitive. He loves to be held and kissed, and says "I need a hug" when he's feeling down.

  2. Matthew has a wonderful sense of humor and laughs when other people laugh.

  3. He is a total "ladies man". Matthew loves looking and smiling at females (of all ages) and they often melt when they see his big blue eyes and dimples!

  4. Matthew loves to sing and dance. His current favorites are Itsy Bitsy Spider & the Chicken Dance (learned at preschool).

  5. Matthew still enjoys going for long walks in his stroller (especially with Ni-Ni). He likes to stop at every stop sign and never hesitates to say "hi" to strangers.

  6. He loves to finish sentences such as I love ... "YOU!" and 1, 2, 3... "GO!"
  7. Matthew reads signs while riding in the car (examples: McDonald's, Kohl's, Target, Wal-Mart)...his ped says he's recognizing the colorful logos, but we call it reading!

  8. Matthew has a great memory. He recites numerous lines from books and videos using real words mixed with his jargon.

  9. He is fascinated by elevators. Matthew has created his own at home using the bi-fold door on the linen closet...and makes appropriate sound effects to go with it!

  10. Matthew enjoys going to restaurants like Chili's and Cracker Barrel...does anyone know if their french fries are GFCF???

Saturday, April 12, 2008

Thomas & Friends Play Date



Today we took Matthew to a Thomas & Friends "play date" at Toys R Us. Matthew spent time with about 15 other kids and listened to a story, played with a huge wooden train set, and colored pictures. At the end of the session, the children were given Thomas trading cards and several coupons. It was a good opportunity for Matthew to interact with some NT (neuro typical) peers and he had a great time!

Tuesday, April 8, 2008

Thought-provoking Shopping Experience

I went to TJ Maxx in search of new puzzles for Matthew and clothes for me. While there, I noticed a teenage girl sitting on the floor in the shoe department playing with the laces and mumbling to herself. She was wearing a badge on a string around her neck so I thought she was an employee and that her behavior was a bit unusual but I moved on to the toy section. There I saw 2 other "odd" individuals - one was staring at the baby toys and the other was touching the board books...again, both had badges and I thought, "wow, TJ Maxx has several special employees working here...good for them, but I think there might be some productivity issues". Then, while I was looking at the shirts, a woman came up to me and asked if the shirt I found was on clearance...yada yada. She was very friendly and I stood behind her at check-out. I noticed she was wearing a badge which said Fairfax County Public Schools. On my way out of the store, I saw the 3 teenagers plus 3 others boarding a school bus with that lady. Then it all made sense...she was the guide and they were the special needs students out on a field trip. Maybe it had something to do with a "life skills" class but why was there only 1 adult and why was she shopping for herself while the rest of the kids (they looked like they were about 16 years old) were sitting on the floor or staring at the baby toys? What if one of the kids ran out the door into the street or broke something in the housewares department and hurt themselves? What exactly did they learn during this exercise...that you go to the store to play with shoe laces?

It made me wonder, is this the kind of field trip Matthew will go on in the future? Will someone look after him and teach him something that will be useful in the real world? I need to start teaching him "life skills" ASAP!

Thursday, April 3, 2008

Two Wonderful Documentaries


I love BOTH "Autism: The Musical" and "Beautiful Son"!!!




HBO has been showing the Musical often and I always stop to watch a few minutes of it (again) b/c I am fascinated with Lexi and adore Wyatt. In case you haven't heard, it is "
the story of five autistic children, their families, and the dynamic woman who leads them to defy expectations by writing, rehearsing, and performing their own musical."

I heard about Beautiful Son ("a documentary about one family's struggle to heal their son from autism") a few months ago and had been eagerly waiting for PBS to air it. They showed it last night at 11pm (I was tired but stayed up) and it was excellent and the cinematography is breathtaking. I was quite happy to see our DAN doctor in it...she is also their DAN and yes, they actually travelled from Hawaii to Virgina to see her!

If you haven't seen these films, please look for them...both are available on DVD. Even if you don't have a loved one with autism, the documentaries are very well done, informative, and will touch your heart.